Charlotte's Story

“Charlotte was 15 months old when she was diagnosed with Rett syndrome. It is a rare genetic neurological and developmental disorder that affects the way the brain develops. It causes a progressive loss of motor skills and language ability.

Shock was our initial reaction after her diagnosis, followed by a period of grieving for all the things we imagined Charlotte would never be to do or achieve.

Charlotte is a happy, smiley and endearing girl who is especially resilient to everything life throws at her, although she is becoming a typical teenager who likes to have time on her own in her room. She is a social butterfly who loves the attention when she’s in a group of people.

“Assistive technology is vitally important for Charlotte as it gives her so much enjoyment and pleasure alongside enabling her to communicate, which is huge and life changing for a child who is non-verbal and non-mobile.”

She loves playing games on her Eyegaze, and is particularly fond of the custard pie splat game! It is wonderful to see her so happy and animated.

She loves playing games with her brother, Finley, as the technology allows them so share quality time together as equals, something that is often difficult to do.

Charlotte attends a special school who are fantastic and provide a sensory based learning curriculum. She uses Eyegaze at school and the staff are working to develop her communication skills.

Charlotte loves sensory lights and watching anything colourful, musical and Disney inspired. She loves the Sensory Pods and the Magic Carpet; it gives her so much joy.

Being able to access this technology means so much to children like Charlotte. It allows children with complex needs the opportunity to express their needs and feelings, alongside the fun and enjoyment that all children should be able to experience.”

– Charlotte’s mum, Tammy