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Support life-limited and disabled children in hospices by helping us provide life-changing assistive technology.

New Lifelites packages in 2020

Take a look at the children' hospices services we hope to support this year

Read about the children we help

Read the inspiring stories of the children we've helped

Help and support with Lifelites equipment

Our tech support team are just a phone call away...

Troy

Troy has Spinal Muscular Atrophy Type 2 which is a genetic neuromuscular disorder that affects the nerve cells that control voluntary muscles. 

He relies on parents and carers for all moving/handling and personal care. Troy can communicate well and is able to see. He moves around in an electric wheelchair so that he is able to get around independently. Troy is unable to move his arms himself however has movement in his hands.

As Troy has difficulties moving his arms and hands, he often gets frustrated that he cannot use things that he would like to play with. When his carers at ellenor, a hospice at home service in Kent, introduced the Lifelites-donated Switches, it opened so many opportunities that Troy is able to experience. He loves the Switches!

Troy came up with the amazing idea of wanting to make Oreo cupcakes for himself and his family. The cooking day came and Troy was super excited. He was up and ready waiting to make cakes. Troy loved being able to be in control of the mixer and telling his carers what was next to put into the bowl. When we made the final dozen of cakes, he called his family on thier mobiles to come into the kitchen. His family was amazed by the cakes that he made and enjoyed eating every single one of them! Troy was really proud of himself too, and so is the Lifelites team!

From this day on he wants to cook every week!

20200228_151708  Troy mixing  

20200228_164804

 
 

Madison

Little Madison has Down syndrome, a chronic lung disease, is oxygen dependent, and has a weak immune system. She cannot eat food orally but has to use a flexible feeding tube instead. She also has sight problems, might need hearing aids and as a one-year-old, she already had open heart surgery. But with our  donated Mobile Magic Carpet, she can comfortably move around, explore bright lights and play with the moving bubbles around her. For some time, she can escape the confines of her conditions.

Madison Sipson 2

 

Noah

Two year old Noah has a degenerative condition which makes movement very difficult, but the staff at his local children’s hospice are able to use the donated Lifelites technology to encourage him to move through fun and play, helping him to stay active for as long as possible. 

Noah For Website

 

John

Eleven-year-old John Junior (JJ) used to be a lively young boy, able to explore the world and attend a mainstream school. But then he was diagnosed with ALD, cerebral x-lined adrenoleukodystrophy, meaning he suddenly lost his ability to walk or talk.

John At Ellenor1

 

Heavenly

A brain tumour at the age of six left Heavenly with a number of disabilities, but the equipment provided by Lifelites has opened up a whole new world to her.

Heavenly And Mum Kellie 1 Small

 

Alex

Alex had a brain tumour when he was six years old. After his surgery, he received extensive chemo and radio therapy. He spent three months in isolation when his stem cells were replaced and he initially recovered well. A year later, he relapsed and was given palliative diagnosis. But to the huge delight of his family and friends, his conditions very slowly improved again and is spreading joy with his lovely, bubbly personality!  

IMG_5726

 

Samuel

Seven year old Samuel has cerebral palsy and is a regular visitor to Acorns for the Three Counties in Worcester.

Samuel Eyegaze June 2016 3

 

Thomas and Connor

Brothers Thomas and Connor, aged 9 and 6, were born with life limiting complex congenital heart disease. Each has only half a heart.

IMG 4572

 

Lois

Six year old Lois Russell who suffers from severe spastic quadriplegic cerebral palsy and epilepsy was one of the first to try out the technology when Lifelites visited Keech Hospice Care in Luton.

H119

 

Craig

Our technology enhances the lives of thousands of terminally ill and disabled children and young people across the British Isles every day. One of those very special people is Craig.

Craig Stagg 1

 

William

William Young-Dagg is five years old and visits Butterwick Children’s Hospice in Durham. 

Williamlifelites1

 

Megan

Nine year old Megan Farrell from Middlesbrough has been attending Butterwick House for three years for short breaks so that her mum, dad and sister can take a little time off from their caring responsibilities. 

Lifelites Caroline Helping Megan

 

Josh

Josh is a frequent visitor to Each Anglia Children’s Hospice in Cambridge and a very enthusiastic gamer.

Photo 5

 

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Email: info@lifelites.org
Telephone: 0207 440 4200
Address:
Lifelites
26 Great Queen Street
London
WC2B 5BL
Charity No: 1165791