A brain tumour at the age of six left Heavenly with a number of disabilities, but the equipment provided by Lifelites has opened up a whole new world to her.
Heavenly wasn’t born disabled, but was diagnosed with an ependymoma brain tumour at the age of six. During the operation which ultimately saved her life, she suffered a stroke which robbed her of her speech and the use of her limbs and eyesight on her right side. After winning her fight with cancer she was diagnosed with a rare condition called poiklothermia, which means that she cannot maintain a normal body temperature and lives with hypothermia every day. Some days her temperature can be as low as 18°C.
Heavenly uses the Lifelites equipment at Acorns in the Black Country, but particularly likes the iPads. Her mum Kelly told us about the impact they have had on her: “The iPad has made such a difference to Heavenly’s life. I could go on forever about how important this tech is to her; the whole family can use it communicate and play with her.
“Heavenly is unable to speak, and over the years she has used a range of different communication tools but once she started using the iPad suddenly she was a completely different child. Also, due to her condition she can’t go out a lot and isn’t currently able to attend school, but she can use the iPad to stay in touch with her friends, keep up with her education and play games with the whole family. It has given her so much confidence.”
Despite going through so much, Heavenly, who is now 12 years old, is able to use the Lifelites iPads and other pieces of Lifelites equipment to have fun, be creative, communicate and control something for herself.
Seven year old Samuel has cerebral palsy and is a regular visitor to Acorns for the Three Counties in Worcester.
Brothers Thomas and Connor, aged 9 and 6, were born with life limiting complex congenital heart disease. Each has only half a heart.
Six year old Lois Russell who suffers from severe spastic quadriplegic cerebral palsy and epilepsy was one of the first to try out the technology when Lifelites visited Keech Hospice Care in Luton.
Our technology enhances the lives of thousands of terminally ill and disabled children and young people across the British Isles every day. One of those very special people is Craig.
William Young-Dagg is five years old and visits Butterwick Children’s Hospice in Durham.
Nine year old Megan Farrell from Middlesbrough has been attending Butterwick House for three years for short breaks so that her mum, dad and sister can take a little time off from their caring responsibilities.
Josh is a frequent visitor to Each Anglia Children’s Hospice in Cambridge and a very enthusiastic gamer.