Our commitment to you is that we will respect any personal data you or organisations share with us, and keep it safe. We aim to be clear when we are collecting your data and not do anything that you would not reasonably expect. We only ask for information that will inform how we communicate with you and provide vital statistical information to support our work for disabled and life-limited children in hospices throughout the British Isles.
Please read the following information which explains how we collect your data, the purpose of collecting it and how we process it.
The Data We Collect
We collect some or all of the following information from you, or via third parties (where you have consented to them to sharing the data with us) or from publicly available information.
From Third Parties
If you have consented to share data via your settings, third parties will share data with us, such as fundraising activities from Just Giving, Virgin Money, and similar sites or social media sites.
To help us profile our supporters so that we may target our resources most effectively, we may use public data such as held on Companies House, the Office of National Statistics and other government sites containing socio-economic data for post code areas.
We do not actively seek to populate telephone numbers and dates of birth that you have not given to us but we may ask you directly. However, this and other information may be provided to us through other sources (that you have consented to be made publicly available).
If we retain any information not provided by you, we will record the source it originates from and whether it was publicly accessible.
We will use the data we collection:
a) To communicate with you regarding any opportunities to support Lifelites including activities you have volunteered for or events you have signed up to
b) To administer your financial transactions with us including any fees, donations and processing any related gift aid
c) To keep a record of our relationship with you and to help us better inform our services to you in the future
d) To communicate with you based on your preferences, including sending you information about our work and how you can support it, that we feel may be relevant or of interest to you
e) In the event you enter your details on one of our online forms but don’t complete the submission, we may contact you to see if we can help with any problems you may be experiencing with our forms or website
f) To profile our supporters by geographic, demographic and other information from the sources above allows us to provide relevant and timely communications and a more tailored service to you. Profiling allows us to focus our resources, maximising the effectiveness of the financial support we receive and allowing us to make appropriate requests for additional support from those who may be able and willing to contribute more.
How We Keep Your Data Secure and Who Processes Your Data
The charity is the data controller and will perform the processes above with the support of trusted partners and suppliers, who will be held to the same standards of compliance as we are ourselves. We ensure they store the data securely and are contractually obliged to adhere to all the data regulations required by law.
Where suppliers run their operations outside the European Economic Area (EEA) and are not subject to the same data protection laws as those based in the UK, we will take steps to ensure they provide an adequate level of protection in accordance with the data protection laws that apply in the UK. By submitting your personal information to us you agree to this transfer, storing or processing at a location outside the EEA.
We will monitor our trusted partners and suppliers to ensure they are adhering to the required standards.
We may need to disclose your data if required to the police, regulatory bodies or legal advisors. We will only ever share your personal data in other circumstances if we have your explicit and informed consent.
Where you use a third party to provide data to us, for example, online fundraising sites, such as Just Giving, will have their own data protection and privacy policies and we recommend you are aware of these before signing up.
Our Communications With You
There are many ways for you to engage with us. The communications you receive from us will be tailored to the nature of that engagement.
By providing Lifelites with your contact information (address, email, or telephone), you will receive the following communications:
If you wish, you may opt out of any of these services at any time by emailing firstname.lastname@example.org or calling 0207 440 4200.
We may also contact you by post, in addition to the above, with relevant and timely communications on the work the charity is doing, to give you the opportunity to help us campaign and fundraise for Lifelites. We believe that by engaging with the charity, you would reasonably expect to be kept informed when opportunities arise (reasonable expectation), but you may opt out at any time if you don’t feel they are relevant for you at any time.
We will not send these communications by electronic means (including email, SMS, telephone) unless you specifically give us consent to do so.
Our relationship with you
To help us tailor our communications to fit with you, we will keep your data for as long as you continue to engage with us. If we do not hear from you, we will not contact you once two years has elapsed since your last response to us.
If you no longer wish to engage with us, please let us know via email, post or telephone and we will stop communicating with you and processing your data.
Your Data And Your Rights
You have a right to ask for a free initial copy of the information we hold about you, although we may charge a fee to provide further copies of this information.
If you find discrepancies in the information we provide, please advise us by calling 0207 440 4200 or emailing email@example.com so we can correct them.
If you would like access to your information, please send a description of what information you would like a copy of, along with proof of your identity to Data Officer, Lifelites, 26 Great Queen Street, London, WC2B 5BL. We will supply the information as requested within one month of receipt or advise you if we are unable to comply for any reason.
You have a right to ask us to restrict or stop processing your personal data, and if it’s not necessary for the purpose you provided it to us for (e.g. processing your donation) we will do so.
Please contact us on 0207 440 4200 or email admin@Lifelites.org if you have any concerns. At your request, we will erase any data we hold unless it is required for legal or financial reasons (if you no longer wish for us to hold or process your data).
If you have any questions please send these to firstname.lastname@example.org, and for further information see the ICO link on how to access your information - https://ico.org.uk/for-the-public/personal-information/
Derian House Children's Hospice in Lancashire wrote a letter to Lifelites, telling us about scenarios where they've used some our Lifelites donated technology, such as the Mobile Magic Carpet, our accessible gaming equipment, and the GoPro, to create memories that last beyond a lifetime.
We know that the technology and services that we provide can change a child’s life. It gives children in hospices the opportunity to do so many things that they never thought possible, such as paint a picture, create music, play a game, or communicate with their family.
We’d like to introduce you to some of the children who have used the Lifelites technology, and the impact it has had on their short lives.
Lifelites aims to harness the power of technology by donating a wide variety of assistive and inclusive equipment to enhance the lives of terminally ill and disabled children using hospice services.
For these children with complex cognitive and physical impairments, this technology is quite simply magical. It gives them opportunities they wouldn’t otherwise have to join in with the world around them, irrespective of their disabilities.
Providing these opportunities is only possible because of the donations that Lifelites receives.
We would like to say a big thank you to all our delegates coming from children's hospices across the British Isles. Thank you also to the Worshipful Company of Information Technologists and Inclusive Technology for their generous donations.