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Support life-limited and disabled children in hospices by helping us provide life-changing assistive technology.

New Lifelites packages in 2020

Take a look at the children' hospices services we hope to support this year

Read about the children we help

Read the inspiring stories of the children we've helped

Help and support with Lifelites equipment

Our tech support team are just a phone call away...

Megan

Nine year old Megan Farrell from Middlesbrough has been attending Butterwick House for three years for short breaks so that her mum, dad and sister can take a little time off from their caring responsibilities. Megan needs help to move about and is very restricted in what she can do for herself.

Megan’s mum Julie says: “Megan often plays with the special assisted technologies at the hospice that have been provided by Lifelites. She loves the interaction between herself and staff members as they work through special programs on the computer that stimulate and interest her.

Lifelites Caroline Helping Megan

“These include the on screen stories they read together. The care team member reads the story to Megan talking about the characters on the page. Megan’s task is to turn the pages at the right moment. With a normal book Megan would not be able to manage this. But with the huge soft mouse (Gooshy Switch) provided by Lifelites all Megan needs to do to turn the page is tap the mouse.

“There are several other programs which help Megan to interact in a confidence building and empowering way. Her interaction with the care team through the computer tablet helps to build good therapeutic relationships between her and the care team members.”

 
 

Evan

Evan is three years old and is classed as a SWAN, meaning he has a syndrome without a name. Evan is severely delayed in all areas of his development and is unable to sit up, walk or roll, and unable to communicate verbally.But the Lifelites-donated Mobile Magic Carpet enables Evan to play, control something himself!

Evan 5

 

Madison

Little Madison has Down syndrome, a chronic lung disease, is oxygen dependent, and has a weak immune system. She cannot eat food orally but has to use a flexible feeding tube instead. She also has sight problems, might need hearing aids and as a one-year-old, she already had open heart surgery. But with our  donated Mobile Magic Carpet, she can comfortably move around, explore bright lights and play with the moving bubbles around her. For some time, she can escape the confines of her conditions.

Madison Sipson 2

 

Noah

Two year old Noah has a degenerative condition which makes movement very difficult, but the staff at his local children’s hospice are able to use the donated Lifelites technology to encourage him to move through fun and play, helping him to stay active for as long as possible. 

Noah For Website

 

John

Eleven-year-old John Junior (JJ) used to be a lively young boy, able to explore the world and attend a mainstream school. But then he was diagnosed with ALD, cerebral x-lined adrenoleukodystrophy, meaning he suddenly lost his ability to walk or talk.

John At Ellenor1

 

Alex

Alex had a brain tumour when he was six years old. After his surgery, he received extensive chemo and radio therapy. He spent three months in isolation when his stem cells were replaced and he initially recovered well. A year later, he relapsed and was given palliative diagnosis. But to the huge delight of his family and friends, his conditions very slowly improved again and is spreading joy with his lovely, bubbly personality!  

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Heavenly

A brain tumour at the age of six left Heavenly with a number of disabilities, but the equipment provided by Lifelites has opened up a whole new world to her.

Heavenly And Mum Kellie 1 Small

 

Troy

Troy has Spinal Muscular Atrophy Type 2 which is a genetic neuromuscular disorder that affects the nerve cells that control voluntary muscles. Troy needs to sit in a wheelchair and has difficulties moving his hands and arms. He often gets frustrated because of all the limitations he faces every day. But the Lifelites-donated Switches allowed him to bake cakes for his family, he is so proud of himself and now wants to bake all the time! 

Troy

 

Samuel

Seven year old Samuel has cerebral palsy and is a regular visitor to Acorns for the Three Counties in Worcester.

Samuel Eyegaze June 2016 3

 

Thomas and Connor

Brothers Thomas and Connor, aged 9 and 6, were born with life limiting complex congenital heart disease. Each has only half a heart.

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Lois

Six year old Lois Russell who suffers from severe spastic quadriplegic cerebral palsy and epilepsy was one of the first to try out the technology when Lifelites visited Keech Hospice Care in Luton.

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Craig

Our technology enhances the lives of thousands of terminally ill and disabled children and young people across the British Isles every day. One of those very special people is Craig.

Craig Stagg 1

 

William

William Young-Dagg is five years old and visits Butterwick Children’s Hospice in Durham. 

Williamlifelites1

 

Josh

Josh is a frequent visitor to Each Anglia Children’s Hospice in Cambridge and a very enthusiastic gamer.

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Email: info@lifelites.org
Telephone: 0207 440 4200
Address:
Lifelites
26 Great Queen Street
London
WC2B 5BL
Charity No: 1165791