Six year old Lois Russell who suffers from severe spastic quadriplegic cerebral palsy and epilepsy was one of the first to try out the technology when Lifelites visited Keech Hospice Care in Luton.
Lois’ mum Karen said: “Lois is a very clever and funny little girl locked in a body that doesn’t do as it is told. You can have a laugh and a joke with Lois and she really listens to everything people say to her. She knows exactly what she wants but she is unable to tell us, which as parents is just heart-breaking.
“Lois has developed her own basic way of communicating whereby she smiles if the answer to a question she is being asked is yes, and she looked down or looks away for no. We have been thinking about communication devices for a while now and have started to explore the possibility of Eyegaze technology with Lois. Although Lois’s vision is poor her sight loss is neurological not physical.
“This means that over the years she has learned to use her eyes to the best of her ability when simply looking at things as well as when choosing. We have tried a number of communication aids with Lois including the use of switches and auditory lists, both of which are good for developing Lois’s ability to choose but don’t allow her a great level of independence. So to have the technology available for Lois to use more independently to communicate is a dream come true for us and for her. It takes her a step towards having the voice she deserves.”
A brain tumour at the age of six left Heavenly with a number of disabilities, but the equipment provided by Lifelites has opened up a whole new world to her.
Seven year old Samuel has cerebral palsy and is a regular visitor to Acorns for the Three Counties in Worcester.
Brothers Thomas and Connor, aged 9 and 6, were born with life limiting complex congenital heart disease. Each has only half a heart.
Our technology enhances the lives of thousands of terminally ill and disabled children and young people across the British Isles every day. One of those very special people is Craig.
William Young-Dagg is five years old and visits Butterwick Children’s Hospice in Durham.
Nine year old Megan Farrell from Middlesbrough has been attending Butterwick House for three years for short breaks so that her mum, dad and sister can take a little time off from their caring responsibilities.
Josh is a frequent visitor to Each Anglia Children’s Hospice in Cambridge and a very enthusiastic gamer.